By Samuel Spio-Gabrah
Tema, Feb. 20, GNA – The Sickle Cell Condition Advocates (SICCA) has called on the government to intensify efforts to combat sickle cell disease, a genetic disorder that continues to affect thousands of newborns annually in Ghana.
According to the Ghana Health Service (GHS), approximately two per cent of babies born in Ghana are diagnosed with sickle cell disease, making it a significant public health concern.
Madam Charlotte Owusu, the Founder of SICCA, in an interview with the Ghana News Agency (GNA), emphasised the urgent need for increased public awareness and voluntary testing.
She expressed concern that many Ghanaians were unaware of their sickle cell status, while others who knew they were carriers often failed to consider the implications when choosing partners.
“Some people shy away from testing, and others who know they are carriers still go ahead to marry without proper counselling, which later leads to regrets when children are born with the condition,” she said.
Madam Owusu called on the government to expand and institutionalise nationwide newborn screening programmes, particularly in rural communities where access to testing and early diagnosis remains limited.
“Most rural communities are left out of screening initiatives. We must bridge this gap to ensure equal access to early detection and comprehensive care,” she stressed.
She noted that early diagnosis through newborn screening significantly improves survival rates, as affected children can receive timely medical intervention, preventive care, and parental guidance.
Touching on management of the disease, Madam Owusu highlighted the importance of maintaining a healthy home environment, ensuring proper nutrition, adequate hydration, and protecting children from extreme temperatures, which can trigger crises.
She further identified infections as a major cause of death among children living with sickle cell disease, citing statistics indicating that about 80 per cent of sickle cell-related deaths occur before the age of five.
“This is why early detection, routine immunisation, prompt treatment of infections, and continuous medical monitoring are critical,” she added.
Madam Owusu urged policymakers, healthcare providers, civil society organisations, and families to collaborate in strengthening public education campaigns to reduce stigma and promote responsible decision-making.
She reiterated that sickle cell disease, though inherited, can be better managed with awareness, early intervention, and sustained government support.
GNA
Edited by Laudia Anyorkor Nunoo/Benjamin Mensah